Chicagoland Providers - EDS aware
Dysautonomia
Dr. Alexandru Barboi - Neurology, Psychiatry, Dysautonomia.
https://www.northshore.org/apps/findadoctor/physicians/alexandru-cezar-barboi
Dr. Octavia Kincaid – Neurologist
https://www.northshore.org/apps/findadoctor/physicians/octavia-b.-kincaid
Dr. Hrayr Attarian - Sleep Neurologist
https://www.nm.org/doctors/1427089119/hrayr-p-attarian-md
Integrative and PCP
Dr. David Edelberg, MD
https://wholehealthchicago.com/our-practitioners
Dr. Caley Scott, ND
https://wholehealthchicago.com/our-practitioners
Dr. Casey Kelly, MD
https://www.caseintegrativehealth.com/
Dr. Mina Ryu
Evanston, Glenview
https://www.northshore.org/integrative-medicine/
Dr. Maleeha N Hashmi Basha, MD
Naperville
https://www.dulyhealthandcare.com/physicians/maleeha-n-hashmi-basha-md
Pain Specialists
Dr. Victoria Anne Brander - Physical Medicine and Rehab
https://www.globalhealthpartnersnu.com/our-practice/
Dr. Heidi Collins - Physical Medicine and Rehab
https://providers.beaconhealthsystem.org/provider/Heidi+Collins/1501926
Dr. James Gruft, MD - Physical Medicine and Rehab
https://www.eehealth.org/find-a-doctor/g/gruft-james-h/
Dr. Richard Caner, MD - Anesthesiology and Pain Management
https://prairieshorepaincenter.com/about/medical-team/dr-richard-a-caner/
Dr. Azlan Tariq, DO - Physical Medicine and Rehab
Sports Medicine, Electrodiagnostic Testing
Prolotherapy. Also can diagnose EDS/HSD
Naperville
https://optimalhealthmedicalfitness.com/about-us/our-doctors-staff/
Dr. Matthew Jaycox - Anesthesiology and Pain Management
https://doctors.rush.edu/Details/1891/matthew-jaycox-pain_medicine-chicago
Dr. Shaiba Ansariali, MD. Rheumatology
https://www.nm.org/doctors/1932217643/shaiba-z-ansariali-md
Headache Specialists
Dr. David Larsen
http://www.headachemedicine.info/migraine.html
Immunology/Allergy - MCAS
Dr. Vivian Chou, MD - Allergy/Immunology
Dr. Marla Barkoff, MD - Endocrinology
Dr. Mary C Tobin - Immunology
Dr. Yasmeen Bilimoria, MD - Allergy/Immunology
Dr. Anne Maitland, MD - Allergy/Immunology. In NY, may do telehealth
Leonard Weinstock, MD - GI and MCAS. In St. Louis, may to telehealth
Psychology/Psychiatry
Dr. Joshua Straus - Psychiatry, Pain
https://www.northshore.org/apps/findadoctor/physicians/joshua-l.-straus
Genetic Testing - Pediatric
Dr. Carolyn Jones MD
https://www.nm.org/doctors/1518931492/carolyn-jones-md-phd
Dr. Philip Giampietro, MD
https://hospital.uillinois.edu/find-a-doctor/philip-giampietro
Genetic Testing - Adult
Dr. Bradley Tinkle, MD
Indianapolis
Dr. Clair Francomano, MD
Indianapolis
https://medicine.iu.edu/faculty/44791/francomano-clair
Dr. Peter Hulick
https://www.northshore.org/apps/findadoctor/physicians/peter-j.-hulick
Dr. Philip Giampietro
https://hospital.uillinois.edu/find-a-doctor/philip-giampietro
Cardiology
Dr. Francisco Aguilar
Fertility and Pelvic Pain
Dr. Charles E Miller - can eval for pelvic congestion syndrome
Dr. Scott A Resnick- Interventional radiology. Eval for pelvic congestion syndrome
https://www.nm.org/doctors/1245268382/scott-a-resnick-md
Dr. Colleen M Fitzgerald - Urogynecology
https://www.loyolamedicine.org/provider/colleen-m-fitzgerald-md-urogynecology
Dr. Maureen Brenna - OBGYN
https://care.advocatehealth.com/doctors/maura-c-brennan-park-ridge-obstetrics-gynecology
GI
Dr. Mark Demeo MD
https://doctors.rush.edu/details/1051
Dr. Harold J Boutte
https://www.nm.org/doctors/1487911038/harold-j-boutte-jr-md
Leonard Weinstock, MD - GI and MCAS
St. Louis - may do telehealth
Pediatric GI
Dr. Manu Sood, MD
https://www.chw.org/physician-directory/S/Sood-Manu-R
Dr. Petter Osgood
https://www.luriechildrens.org/en/doctors/osgood-peter/
Orthopedic Surgery
Dr. Patel Ashish- Spine
https://www.dulyhealthandcare.com/physicians/ashish-patel-md
Ophthalmologist
Dr. Kelly Oliver
https://www.dryeyeillinois.com/
Neurosurgery
Dr. Nader Dahdeleh
https://www.nm.org/doctors/1831307339/nader-s-dahdaleh-md
Dr. Martin Herman
https://www.uchicagomedicine.org/find-a-physician/physician/martin-herman
Facial Pain Specialist
Dr. Jasjot Sahni, DDS
https://facialpainchicago.com/
POTS program Johns Hopkins
Baltimore https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/services/programs/pots/index.html
