Chicagoland Providers - EDS aware
Dysautonomia/POTS
Dr. Alexandru Barboi - Northshore, Glenview and Evanston. Neurology, Psychiatry, Dysautonomia.
Dr. Octavia Kincaid – Northshore, Glenview. Neurologist
Dr. Hrayr Attarian - NWMH Chicago. Sleep Neurologist
Dr. Nauman Mushtaq - NWMH Winfield and Geneva. Interventional Cardiologist. NWMH Winfield and Geneva
Dr. Francisco Aguilar - Hinsdale - Electrophysiology Cardiologist
EDS Clinic - Several US states including IL. Virtual clinical hEDS/HSD diagnosis and treatment for EDS and related conditions like POTS, MCAS etc
Functional, Integrative and PCP
Dr. Caley Scott, ND - HealthStyle Holistic. Virtual in IL
Dr. David Edelberg - Whole Health Chicago, Lincoln Park
Dr. Anna Jonas - NWMH
Dr. Paul Ravenna - NWMH
Dr. Casey Kelly, MD - Chicago, West Town
Dr. Deepti Agarwal - Chicago, West Town
Dr. Mina Ryu - Evanston, Glenview
Dr. Maleeha N Hashmi Basha, MD - Naperville
Pain Specialists
Dr. Kiran Chekka - Global Health Partners, Pain Physician and Anesthesiologist
Dr. Victoria Anne Brander - Global Health Partners, Physical Medicine and Rehab
Dr. Heidi Collins - Mishawaka IN - Physical Medicine and Rehab
Dr. James Gruft, MD - From Pain To Wellness LLC, Oakbrook Terrace - Physical Medicine and Rehab
Dr. Richard Caner, MD - Prarie Shore Pain Center, Lincolnshire IL. Anesthesiology and Pain Management
Naperville - Physical Medicine and Rehab. Sports Medicine, Electrodiagnostic Testing, Prolotherapy.
Dr. Matthew Jaycox - Anesthesiology and Pain Management
Dr. Shaiba Ansariali, MD. - NWMH, Geneva and Elgin - Rheumatology
Dr. Michael Rock - Chicago Institute for Neuropathic Pain. Chicago and Oak Park
Dr. Linda Bluestein - Colorado and WI, but will do out of state consultations to give recommendations to your local provider.
Headache Specialists
Immunology/Allergy - MCAS
Dr. Vivian Chou, MD - Allergy/Immunology
Dr. Marla Barkoff, MD - Endocrinology
Dr. Mary C Tobin - Immunology
Dr. Yasmeen Bilimoria, MD - Allergy/Immunology
Dr. Anne Maitland, MD - Allergy/Immunology. In NY, may do telehealth.
Leonard Weinstock, MD - GI and MCAS. In St. Louis, may to telehealth
Hematology
Dr. Deborah Ann Katz, MD Iron infusions MCAS aware
Psychology/Psychiatry
Dr. Joshua Straus - Psychiatry, Pain
Genetic Testing - Pediatric
Genetic Testing - Adult
Dr. Bradley Tinkle, MD - Indianapolis
Dr. Clair Francomano, MD - Indianapolis
Atwal Clinic - Virtual US and abroad
Invitae - Online Genetic Testing self referred, will match you with a genetic counselor
EDS Clinic - No geneticist on staff, but an excellent resource. Virtual clinical available in several US states including IL. Can evaluate for clinical hEDS/HSD diagnosis and treatment for EDS and related conditions like POTS, MCAS etc
Cardiology
Dr. Francisco Aguilar - Clinical Cardiac Electrophysiology. Amita Health, Hinsdale, IL.
Dr. Nauman Mushtaq - Interventional Cardiologist. NWMH Winfield and Geneva
Fertility and Pelvic Pain
Dr. Charles E Miller - can eval for pelvic congestion syndrome
Dr. Scott A Resnick- Interventional radiology. Eval for pelvic congestion syndrome
Dr. Colleen M Fitzgerald - Urogynecology
Dr. Maureen Brenna - OBGYN
GI
Dr. Mark Demeo MD - RUSH, Chicago and Oakbrook
Dr. Kenika Robinson, MD - RUSH, Chicago
Dr. Harold J Boutte - NWMH, Chicago
Leonard Weinstock, MD - GI and MCAS. St. Louis - may do telehealth
Pediatric GI
Interventional Radiology
Dr.Michael Sichlau - Advocate Hinsdale
Orthopedic Surgery
Dr. Patel Ashish- Spine
Ophthalmologist
Neurosurgery
Dr.John Paul Wolinsky and Dr. Nader Dahdeleh - NWMH Chicago
Dr. Vincent Trayvelis - Rush
Dr. Martin Herman - University of Chicago
Dr. Dan Heffez - Tethered Cord. Milwaukee
Facial Pain Specialist
POTS program Johns Hopkins
Baltimore - https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/services/programs/pots/index.html
