Chicagoland Providers - EDS aware 


Dr. Alexandru Barboi - Northshore, Glenview and Evanston.  Neurology, Psychiatry, Dysautonomia.   

Dr. Octavia Kincaid ‚Äď Northshore, Glenview.¬† Neurologist

Dr. Hrayr Attarian - NWMH Chicago. Sleep Neurologist

Dr. Nauman Mushtaq - NWMH Winfield and Geneva. Interventional Cardiologist.  NWMH Winfield and Geneva

Dr. Francisco Aguilar - Hinsdale - Electrophysiology Cardiologist


Functional, Integrative and PCP

Dr. David Edelberg - Whole Health Chicago

Dr. Caley Scott, ND - Whole Health Chicago - Mt. Greenwood

Dr. Anna Jonas - NWMH

Dr. Paul Ravenna - NWMH

Dr. Casey Kelly, MD - Chicago, West Town

Dr. Deepti Agarwal - Chicago, West Town

Dr. Mina Ryu - Evanston, Glenview

Dr. Maleeha N Hashmi Basha, MD - Naperville 

Pain Specialists 

Dr. Kiran Chekka - Global Health Partners, Pain Physician and Anesthesiologist

Dr. Victoria Anne Brander - Global Health Partners,  Physical Medicine and Rehab 

Dr. Heidi Collins -  Mishawaka IN  - Physical Medicine and Rehab 

Dr. James Gruft, MD - From Pain To Wellness LLC, Oakbrook Terrace - Physical Medicine and Rehab 

 Dr. Richard Caner, MD - Prarie Shore Pain Center, Lincolnshire IL.  Anesthesiology and Pain Management

Dr. Azlan Tariq, DO -  Naperville - Physical Medicine and Rehab. Sports Medicine, Electrodiagnostic Testing, Prolotherapy.  

Dr. Matthew Jaycox - Anesthesiology and Pain Management

Dr. Shaiba Ansariali, MD. - NWMH, Geneva and Elgin -  Rheumatology

Dr. Michael Rock - Chicago Institute for Neuropathic Pain. Chicago and Oak Park 

Dr. Linda Bluestein - Colorado and WI, but will do out of state consultations to give recommendations to your local provider. 

Headache Specialists

Dr. David Larsen


Immunology/Allergy - MCAS

 Dr. Vivian Chou, MD - Allergy/Immunology

Dr. Marla Barkoff, MD - Endocrinology

Dr. Mary C Tobin  - Immunology 

Dr. Yasmeen Bilimoria, MD - Allergy/Immunology

Dr. Anne Maitland, MD  - Allergy/Immunology.  In NY, may do telehealth. 

Leonard Weinstock, MD - GI and MCAS.  In St. Louis, may to telehealth



Dr. Deborah Ann Katz, MD Iron infusions  MCAS aware 



Dr. Joshua Straus - Psychiatry, Pain 


Genetic Testing - Pediatric

Dr. Carolyn Jones MD 

Dr. Philip Giampietro, MD


Genetic Testing - Adult 

Dr. Bradley Tinkle, MD  - Indianapolis

Dr. Clair Francomano, MD - Indianapolis

Dr. Peter Hulick

Dr. Philip Giampietro


Dr. Francisco Aguilar - Clinical Cardiac Electrophysiology. Amita Health, Hinsdale, IL. 

Dr. Nauman Mushtaq - Interventional Cardiologist.  NWMH Winfield and Geneva


Fertility and Pelvic Pain

Dr. Charles E Miller - can eval for pelvic congestion syndrome 

Dr. Scott A Resnick- Interventional radiology.  Eval for pelvic congestion syndrome

Dr. Colleen M Fitzgerald  - Urogynecology

Dr. Maureen Brenna - OBGYN


Dr. Mark Demeo MD - RUSH, Chicago and Oakbrook 

Dr. Kenika Robinson, MD - RUSH, Chicago 

Dr. Harold J Boutte - NWMH, Chicago

Leonard Weinstock, MD - GI and MCAS. St. Louis - may do telehealth 


Pediatric GI 

Dr. Manu Sood, MD

Dr. Petter Osgood


Interventional Radiology

Dr.Michael Sichlau - Advocate Hinsdale


Orthopedic Surgery

Dr. Patel Ashish- Spine



Dr. Kelly Oliver



Dr.John Paul Wolinsky and Dr.  Nader Dahdeleh  - NWMH Chicago 

Dr. Vincent Trayvelis - Rush

Dr. Martin Herman - University of Chicago

Dr. Dan Heffez - Tethered Cord. Milwaukee 


Facial Pain Specialist

Dr. Jasjot Sahni, DDS


POTS program Johns Hopkins

Baltimore -