Chicagoland Providers - EDS aware
Dysautonomia/POTS
Dr. Alexandru Barboi - Now at Indiana University Health, Indianapolis. No longer at Northshore in Glenview and Evanston. Neurology, Psychiatry, Dysautonomia.
Dr. Octavia Kincaid – RUSH Neurologist
Dr. Hrayr Attarian - NWMH Chicago. Sleep Neurologist
Dr. Nauman Mushtaq - NWMH Winfield and Geneva. Interventional Cardiologist. NWMH Winfield and Geneva
Dr. Francisco Aguilar - Hinsdale - Electrophysiology Cardiologist
EDS Clinic - Several US states including IL. Virtual clinical hEDS/HSD diagnosis and treatment for EDS and related conditions like POTS, MCAS etc
Primary Care
Dr. Anna Jonas - NWMH, Only available as part of their Executive Health program as of April 1, 2025.
Dr. Paul Ravenna - NWMH
Dr. Deepti Agarwal - Chicago, West Town
Dr. Mina Ryu - Evanston, Glenview
Dr. Maleeha N Hashmi Basha, MD - Naperville
Dr. Ashley Stoecker, DO - Concierge, Naperville. Offers telehealth.
Dr. Amy Pannaralla, DO - U of C, Orland Park
Functional, Integrative and Naturopathic
Dr. Caley Scott, ND - HealthStyle Holistic. Virtual in IL
Dr. David Edelberg - Whole Health Chicago, Lincoln Park
Dr. Casey Kelly, MD - Chicago, West Town
Pain Specialists
Dr. Kiran Chekka - Global Health Partners, Pain Physician and Anesthesiologist
Dr. Victoria Anne Brander - Global Health Partners, Physical Medicine and Rehab
Dr. Heidi Collins - Mishawaka IN - Physical Medicine and Rehab
Dr. James Gruft, MD - From Pain To Wellness LLC, Oakbrook Terrace - Physical Medicine and Rehab
Dr. Richard Caner, MD - Prarie Shore Pain Center, Lincolnshire IL. Anesthesiology and Pain Management
Naperville - Physical Medicine and Rehab. Sports Medicine, Electrodiagnostic Testing, Prolotherapy.
Dr. Matthew Jaycox - Anesthesiology and Pain Management
Dr. Shaiba Ansariali, MD. - NWMH, Geneva and Elgin - Rheumatology
Dr. Michael Rock - Chicago Institute for Neuropathic Pain. Chicago and Oak Park
Dr. Linda Bluestein - Colorado and WI, but will do out of state consultations to give recommendations to your local provider.
Headache Specialists
Immunology/Allergy - MCAS
Dr. Vivian Chou, MD - Allergy/Immunology
Dr. Marla Barkoff, MD - Endocrinology
Dr. Mary C Tobin - Immunology
Dr. Yasmeen Bilimoria, MD - Allergy/Immunology
Dr. John Latall - Offices in Lincoln Park, Chi Downtown, Niles. Allergy/Immunology
Dr. Anne Maitland, MD - Allergy/Immunology. In NY, may do telehealth.
Leonard Weinstock, MD - GI and MCAS. In St. Louis, may to telehealth
Hematology
Dr. Deborah Ann Katz, MD Iron infusions MCAS aware
Psychology/Psychiatry
Dr. Joshua Straus - Psychiatry, Pain
Genetic Testing - Pediatric
Genetic Testing - Adult
Dr. Bradley Tinkle, MD - Indianapolis
Dr. Clair Francomano, MD - Indianapolis
Dr Christine Laukitis - Urbana IL
Atwal Clinic - Virtual US and abroad
Invitae - Online Genetic Testing self referred, will match you with a genetic counselor
EDS Clinic - No geneticist on staff, but an excellent resource. Virtual clinical available in several US states including IL. Can evaluate for clinical hEDS/HSD diagnosis and treatment for EDS and related conditions like POTS, MCAS etc
Cardiology
Dr. Francisco Aguilar - Clinical Cardiac Electrophysiology. Amita Health, Hinsdale, IL.
Dr. Nauman Mushtaq - Interventional Cardiologist. NWMH Winfield and Geneva
Fertility and Pelvic Pain
Dr. Charles E Miller - can eval for pelvic congestion syndrome
Dr. Scott A Resnick- Interventional radiology. Eval for pelvic congestion syndrome
Dr. Colleen M Fitzgerald - Urogynecology
Dr. Maureen Brenna - OBGYN
GI
Dr. Mark Demeo MD - RUSH, Chicago and Oakbrook
Dr. Kenika Robinson, MD - RUSH, Chicago
Dr. Harold J Boutte - NWMH, Chicago
Leonard Weinstock, MD - GI and MCAS. St. Louis - may do telehealth
Pediatric GI
Interventional Radiology
Dr.Michael Sichlau - Advocate Hinsdale
Orthopedic Surgery
Dr. Patel Ashish- Spine
Ophthalmologist
Neurosurgery
Dr.John Paul Wolinsky and Dr. Nader Dahdeleh - NWMH Chicago
Dr. Vincent Trayvelis - Rush
Dr. Martin Herman - University of Chicago
Dr. Dan Heffez - Tethered Cord. Milwaukee
Facial Pain Specialist
Psychotherapy
Julia Howard, LCSW, PMH-C, CYT - virtual and Walk & Talk therapy to adults in Chicago and Illinois
POTS program Johns Hopkins
Baltimore - https://www.hopkinsmedicine.org/physical_medicine_rehabilitation/services/programs/pots/index.html
Help for Hands
Corrine McLees, @hand_coach_corrine is an Occupational Therapist, and certified hand specialist that also specializes in hypermobility. Reach out to her directly about availability for virtual and 1:1 care.
She also has an excellent course “Hypermobile Hands Blueprint” This is an affiliate link for her course, because I took it and it was so helpful for my own hypermobile hands and to help me better help my patients and clients. Highly recommend!
EDS aware Physical Therapy
Dr. Julia Tauber, Andersonville PT, Andersonville, Chicago
Lauren Goldammer, Chicago Physical Therapists, Andersonville, Chicago
Karlee Rehkemper, PT, DPT, Across All Ages Physical Therapy, Breese
Nicole Harju, PT, DPT, Creative Rehab, Gurnee
Theresa Eiden, CARE PT, Lakeview, Chicago
Renee Keefer, Elevate PT, Lakeview, Chicago & Park Ridge
Prutha Nanvati, Prutha Manual Therapy, Lisle
Dr. Bill Bloch, FYZICAL, Naperville
Wendy Wagner, PT, MPT, Wendy4Therapy, Naperville
Dr. Joe King, PT Advantage, North Aurora
Pat Shimanek, Advocate Lutheran General, Park Ridge, Chicago
Dr. Dan McCoy, Team Rehab, River West, Chicago
Dr. Narissa Nebu, Illinois Bone and Joint Institute, Woodridge (Seven Bridges)
Dr. Katie Richcreek - Hypermobile DPT, River West - Chicago
Pelvic Floor PT
Elizabeth Kotarinos, PT, Kotarinos Physical Therapy, Oakbrook Terrace, Vernon Hills
Bernadette Kamin (KAMIN PT), Kamin Physical Therapy, Highland Park, Park Ridge
Megan Jensen, PT, DPT, Vitality Women’s Physical Therapy and Wellness, Elmhurst
Pediatric PT
Laura Brown, PT, DPT, PCS, Lurie Children's Hospital, Chicago
Mary Noreen Cheng, PT, DPT, Lurie Children's Hospital, Chicago
Non-local Providers
Naomi Bauer, DPT, @its_all_about_that_pace is in Europe and takes 1:1 virtual clients. She specializes in POTS, long COVID and is very familiar with hypermobility.
Taylor Goldberg, @thehypermobilechiro, is in Colorado and often collaborates with Naomi and also has a 1:1 coaching program.
Nikki Naab-Levy, @naablevyfitness, is a personal trainer specializing in HSD and does 1:1 strength training for hypermobility
The EDS Society Provider Search
Local EDS Facebook Support Groups (search for your city/area + EDS)
Chicago EDS Facebook Support Group
Dysautonomia International Provider Search
